Supplemental Content: Living Well with Migraine Disease and Headaches


2001 Putting Our Heads Together Poetry Contest

   

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A Way Of Life
by Jeannette
Bright golden stars shooting through space
People walking with half of a face
Beautiful colors dancing through air
Silver shimmering too lovely to despair
Red blood pouring out of a paint can
Pain coming in waves without any dam
Moments of dread, knowing it will last
No where to go, no one to ask
No help is coming, pain shooting me down
Drawing out of me all that is normal, now I am bound
Everything dark, lying in bed
Holding my head and wishing I were dead
Minutes go by, hours just drag in a haze
I am praying Please don't let it be days
I doze off to sleep, awake with a start
My head is throbbing with every beat of my heart
Oh God, I can't stand this terrible pain
Please take it away, its way too much strain
Time? What day is it? My minds in a fog
What was I doing? What did I say? Oh God
I try to talk, I try to think
Nothing works, something stinks
The throbbing is easing, the sharp pains have come
An Ice pick is stabbing, I don't know where from
I hold my eye tight, I press on my head
The ice pick still finds me, I can't make it end
It finally ebbs, this ones done it's job
Now I just sit, a bump on a log
Worn out, too tired to move, I just wait
The next one is coming, I wait at the gate
© 2001
Questions Of A Migraine
by Jaime
Ouch!  I feel it starting up
This oh so familiar pain
That gathers all around my head
I know it as the migraine
What did I do to bring it on?
Did I stare too long at the TV?
Did I eat a food made with chocolate
Or perhaps rich with MSG?
How can I make it go away?
What will make it halt?
Should I reach out for the Imitrex
Or perhaps the box of Maxalt?
I think two Excedrin may do the trick
But I have taken many each day
Will it cause a rebound headache
To come creeping up my way?
What thought provoking questions
May rattle on the brain
When we think of this natural mystery
We all know as the migraine
© 2001
The Night Was Silent
by Julie Zubrycki
the night was silent
the body at rest
the beta waves were crashing 
The Alpha waves were dead
My horror was alive, tonight
I knew tomorrow would be my nightmare
I knew it would finally come
I knew my day would cease to exist
I knew with every passing hour   
I knew My horror was alive, tonight
The birds came a singing
The room fell black
The ringing was a freight train in my head
The pain of my stalker was here
My horror was alive, tonight
The pills went down
The doc made his call
The car raced the night
The wait was endless
My horror was alive tonight
The doc came to me
The nurse in his trails
The IV pierced my flesh
The demerol flowed through my veins
My horror was dead for tonight
© 2001
On  Migraine
by Florence Cardinal
The curse of migraine headaches
Is a blessing, so they say,
For it's only the most brainy
That are tortured in this way.
But there is another theory
About this misery I've got.
It's said that any sort of pain
Attacks your weakest spot!
If it is a mark of genius,
This blinding, throbbing pain,
Then I wish I had been gifted
With less "smartness" of the brain!
© 2001
On  Migraine
by Florence Cardinal
The curse of migraine headaches
Is a blessing, so they say,
For it's only the most brainy
That are tortured in this way.
But there is another theory
About this misery I've got.
It's said that any sort of pain
Attacks your weakest spot!
If it is a mark of genius,
This blinding, throbbing pain,
Then I wish I had been gifted
With less "smartness" of the brain!
© 2001
Slightly Twisted
by Pheeb
slightly twisted
a bit depressed
just out of touch
from all the stress
feel what I see
write what I feel
looking for life
from inside of me
my vision is blurred
as my sight starts to fade
my head starts to explode
just  another day
no relief in sight
lose the will to fight
your sanity flees
the pain so intense
I'm down on my knees
praying to God
to give me strength
just another day
like all the rest
maybe tomorrow
the pain will subside
I'll find away out
and let you know
if I'm still sane 
or lost in the snow
© 2001
Claustrophobia
by Tatyanazap
I'm claustrophobic.
Not locked in a closet claustrophobic,
Not trapped in an elevator claustrophobic,
Not being squished in an airplane bathroom 
      like a sardine claustrophobic,
But the walls are closing in claustrophobic,
So claustrophobic it's hurting my head.
So claustrophobic that I am screaming in terror.
So claustrophobic that I need to run loose - 
      run free in a wide, open field like a wild horse.
© 2001 
Drawing A Lasting Breath
by mixer
drawing a lasting breath from the smoke of the barron fire
I call unto you oh thunderous lord , king of  the great heavens
begging forgiveness for my sins pleading your merciful grace
as though to exhaust this stake from my bleeding heart
thy wound deepens as the hours drag forth in this hellish fire
the salt of a tear passes my lips puddling upon the floor
I fall to my knees head in hands as my faith slowly diminishes
the demon has taken total control and my prayers 
yet go unanswered
if this is the life thou hath so chosen to condemn upon me
lay me down now for I wish to never open my woken eye again
© 2001

 

Headache, Headache
by Tammy
Headache, headache go away weren't you just here the other day?
Please I beg you, not today if you go I can play.
I would invite you some other time but if you come than I must run.
Two years you've come my way, but please I beg you not today!
© 2001

 

NUMBNESS AURA NAUSEA
by Rosalie
Numbness, aura, nausea now
    I want to help; I know not how
  When these symptoms start to fade
   The worst to come, I am afraid
    Now the pain he has to suffer
 Describing his head as pinball buffer
 In darkness and silence he must remain
I want to hold him and transfer the pain
   Hours elapse-it feels like a week
  Til from his door I hear him speak
  At last the active teen has arisen
  From his room--his darkened prison
 So soon in life to endure such pain
 And not know when it will come again
© 2001
Reflection
by Sage
Sadness wells
Impending doom
Despair within
An empty room.
Beneath the pain
Which borders hate
Acceptance only
Hastens fate.
But do we fight
With strength or tears?
Weakness only
Feeds our fears.
Strength prevails
Within our Souls
And we'll survive
To realize goals.
© 2001
Travel Past The Name
by Nicole
Travel past the name
The cruel curse upon which fate resides;
Pain by any other name:
It will still bring tears to my eyes.
Even though it is my mother cursed,
Though cover it she may try,
A blanket over a python is just as fatal
       -If not more,
But together we will cry.
Though pain seems dark,
The opposite of day,
It makes the mind much stronger,
In a powerful sort of way.
Sometimes doctors may find cures,
But so often do they not;
It's known, when pain has no name,
Remedies will still be sought.
So even though a life may seem pitiful,
There's something I must say.
Soon someone may find a cure,
So hang on another day,
Because I'm sure there's a person who loves you,
Who thinks of you the same way.
© 2001
The Battle
by Ted Marcus
I sit, looking eye to eye at the thing.
Make a move, I challenge.
Take a chance.
I sit in my protective gear
of hatred and drugs.
Come take a shot.
I can hurt this creature
more than it can me.
Take a chance.
I slide my nose piece in as I hop the steed to battle.
"Come" I holler. "Come and fight."
The clops get louder.
The horse snorts get steamier.
The shadows take figure.
"Swoosh" goes my battle axe
as the guaranteed defender it misses.
"thrash." Its mace crushes my skull.
The steeds thrust forward again.
"Come" I dare.
"Froosh," It bows and misses.
Swollen faced and running tears
I call it back.
I'll win.
It may have strength,
but I have time
I'll win.
The clops get louder.
The horse snorts get steamier.
The shadows take figure.
The mace takes it's place.
I'm off my horse
and the whacks take there course.
"I'll win," I think.
I wear white.
"I'll gain this fight."
There is no need
For this trampling steed
to stay upon me and make me bleed.
Time is done. Again I win
Give me a sec and let's start this again.
© 2001
The Final Kiss: 
Thoughts During An Attack
by Ted Marcus
The shotgun in my house.
She's so beautiful at times.
Sleek, black, metallic body.
Come to my mouth.
Let me nuzzle your nozzle.
You, my lovely woman,
Have not been evacuated
Since I've known you.
Since we've first met.
I remember you well.
That night, my dear,
Our kisses were so passionate.
So enraptured.
You seemed cold
At first touch, I must say.
But your delight seemed
so welcoming. So soothing.
I fell in love that night, my wife.
I've yet to say good bye to you.
But I will.
But I will.
© 2001
The Story Formerly Known as The Zax
by Dr. Seuss (And Dr. Ted Marcus, of course)
From The Sneetches and Other Stories
Copyright 1961 by Theodor S. Geisel 
and Audrey S. Geisel, renewed 1989. 
Copyright tossed out the window 1999 by Ted Marcus
One day, making tracks
In the prairie of Imitrex,
Came a Nose-using Trex
And a Shot-using Trex.
And it happened that both of them came to a place
Where they bumped. There they stood.
Foot to foot. Face to face.
"Look here, now!" the Nose-using Trex said, "I say!
You are blocking my path. You are right in my way.
I'm a Nose-using Trex and I always go by nose.
Get out of my way, now, and let me do the dose!"
"Who's in whose way?" snapped the Shot-using Trex.
"I always get shot, making shot-junkie tracks.
So you're in MY way! And I ask you to move
And let me get shot in my shot-using groove."
Then the Nose-Using trex puffed his chest up with pride.
"I never," he said, "take a step to one side.
And I'll prove to you that I won't change my ways
If I have to keep standing here with no pain-free days!"
"And I'll prove to YOU," yelled the Shot-using Trex,
"That I can stand here in the prairie of Imitrex
For no pain-free years! For I live by a rule
That I learned as a boy back in Shot-using School.
Never budge! That's my rule. Never budge in the least!
Not an inch for the rest! Not an inch for the Beast!
I'll stay here, not budging! I can and I will
If it makes you and me and the whole world Resort to the pill!"
Well...
Of course the world didn't Use the pill. The world grew.
In a couple of years, the new cure came through
And they sold it right over those two stubborn Trex
And left them there, standing un-budge in their tracks.
Ted Marcus is a Cluster Headache sufferer and serves 
on the board of directors of O.U.C.H., the Organization
for Understanding Cluster Headache. 
© 2001
Fireflies Of Doom
by Teri Robert
my eyes closed,
fireflies blink on the darkness
of my eyelids.
later, eyes open,
tiny, tiny clouds float
across my vision
heat rises from pavement
though I quietly sit
in a cool, carpeted room
in that same room,
faint heat lightening
dances in the periphery
the day is threatened
for the roller coaster
has captured my stomach
the day is doomed
for the jackhammer
has captured my head
© 2001

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