Cavernous
Malformation Information Page
Synonym:
Cavernomas, Cavernous Angioma,
Congenital Vascular Cavernous Malformations, Familial Hemangioma,
Nevus Cavernosus, Vascular Erectile Tumor
Table of Contents
What is Cavernous Malformation?
Is there any treatment?
What
is the prognosis?
What
research is being done?
Organizations
What is Cavernous Malformation?
Cavernous
malformation is a rare disorder of the capillaries and smallest
veins in one part of the brain. The disorder occurs when a
blood-filled mass resembling a tumor, called a hemangioma, forms.
Symptoms include headaches and seizures. Cavernous malformation is
frequently inherited.
Is there any treatment?
Treatment for cavernous malformation is symptomatic and supportive. Surgery may be performed
if the malformation is easily accessible and is causing seizures or
bleeding in the brain. Surgical procedures may be considered too
risky for some elderly patients.
What is the prognosis?
Cavernous malformation is not always life-threatening and often does not require any specific
treatment. After surgery, patients generally improve, some quite
significantly.
What research is being done?
The NINDS supports research on disorders of the central nervous system such as cavernous
malformation. The goals of this research are to increase scientific
understanding of these disorders and to find ways to prevent, treat,
and, ultimately, cure them.
Organizations
Angioma Alliance
107 Quaker Meeting
House Road
Williamsburg, VA 23188
info@angiomaalliance.org
http://www.angiomaalliance.org/
Tel:
866-HEAL-CCM (433-5226)
757-258-3355
National Organization for Rare Disorders
(NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury,
CT 06813-1968
orphan@rarediseases.org
http://www.rarediseases.org/
Tel:
203-744-0100 Voice Mail 800-999-NORD (6673)
Fax:
203-798-2291
Prepared by:
Office of Communications and Public
Liaison
National Institute of Neurological Disorders
and Stroke
National Institutes of Health
Bethesda, MD 20892
NINDS health-related material is provided for information
purposes only and does not necessarily represent endorsement by or
an official position of the National Institute of Neurological
Disorders and Stroke or any other Federal agency. Advice on the
treatment or care of an individual patient should be obtained
through consultation with a physician who has examined that patient
or is familiar with that patient's medical history.
Last updated December 16, 2004
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