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Patient, physician, and public awareness and education
about Migraine and other headache disorders have become a focus of many doctors as well as various organizations and
patient advocates. Studies have shown that educated patients are more compliant with their treatment regimens
and have better outcomes. Educating the public will, hopefully, help
non-sufferers become more aware of head pain disorders as genuine health
problems and offer them a better understanding of the problems of sufferers.
I
recently spoke with Dr. Fred Sheftell, one of the authors of an article in
Headache, “Harry Potter and the Curse of Headache:”
"I've always been a big fan of JK Rowling's
series on Harry Potter and find her imaginative and creative and able to
teach a lot of life lessons to children and adolescents via metaphor and
fantasy. I, of course, recognized Harry had headaches and decided why not
try to classify them according to our current criteria. I wanted to bring
attention to the issues involved with pediatric/adolescent headache, review
the current epidemiology, prevalence and impact in a fresh way and discuss
the diagnostic issues as well. I enlisted the help of my colleague Tim
Steiner who currently chairs the Global Burden of Headache Campaign and
helped me start the World Headache Alliance, which became the patient arm of
the World Health Organization in regard to Headache Disorders. Halley Thomas
our "senior" author helped me locate all descriptions related to his
headaches, and then we attempted to go through a variety of possible
diagnoses and came up with probable migraine as the most likely. I'm
delighted by the response and interest this article has generated and hope
that it will bring about renewed interest in the topic."
Fred Sheftell, MD
Director, New England Center for Headache
President, American Headache Society
In studying the passages describing Harry’s
“headaches,” Dr. Sheftell and Dr. Steiner, noted:
- Harry did not have headaches prior to the
age of 11, a common age of onset for primary headache disorders, especially
Migraine.
- The onset in Harry’s case seems to be some
time prior to puberty since the first evidence of headaches in the series
was apparent when he was 14.
- Although Harry’s headaches haven’t been
frequent, they have periodically left him temporarily dysfunctional, thus
significantly impacting his life and activities.
- All of Harry’s attacks strike without
warning.
- Harry’s primary (and perhaps only) trigger
is proximity to “He Who Must Not Be Named” (Lord Voldemort).
Sheftell and Steiner quote this conversation
between headmaster Dumbledore and Cornelius Fudge, the Minister of Magic:
“I assume that you are referring to the
pains Harry has been experiencing in his scar?” said Dumbledore coolly.
“You admit that he has been having these pains, then?’ said Fudge quickly.
‘Headaches? Nightmares? Possibly – hallucinations?”
“Listen to me, Cornelius,’ said Dumbledore . . . ‘Harry is as sane as you or
I. That scar upon his forehead has not addled his brains. I believe it hurts
him when Lord Voldemort is close by, or feeling particularly murderous.’”
This exchange is nothing new to headache and
Migraine sufferers. Others often blame headaches and Migraines on psychological
issues rather than recognizing the biological origin. Regarding the passage
above, Sheftell and Steiner commented,
“Indeed, lack of understanding of the
nature and impact of headache disorders amongst people generally is a part
of the burden of headache. We are not surprised to see it expressed so
openly in the Wizard community.”
Descriptions of Harry’s headaches:
Here are some passages describing Harry’s headaches and the diagnoses considered
from each passage:
- “Then a pain pierced his head like he’d
never felt before, it was as though his scar was on fire – half blinded, he
staggered backwards . . . The pain in Harry’s head was so bad he fell to his
knees. It took a minute or two to pass.”1 This passage led
Sheftell and Steiner to consider primary stabbing headache, aka ice pick
headaches, and trigeminal neuralgia.
- “At once, a needle-sharp pain seared
across Harry’s scar; his head felt as though it was about to split in two;
he yelled, struggling with all his might, and to his surprise, Quirrell let
go of him. The pain in his head lessened.” 1 This passage, once
again, led the researchers to consider primary stabbing headache, plus
secondary headache due to a structural lesion.
- “And then, without warning, Harry’s scar
exploded with pain. It was agony such as he had never felt in all his life;
his wand slipped from his fingers as he put his hands over his face; his
knees buckled; he was on the ground and he could see nothing at all; his
head was about to split open. . . . The pain in his scar reached such a
pitch that he retched, and then it diminished . . .” 2 From this
description, the ICHD-II diagnosis 6.2.2 Headache attributed to subarachnoid
haemorrhage was considered but rules out because there had been like
episodes previously with no lasting consequences, and Harry’s recovery was
quick and complete.
- “The scar on Harry’s forehead seared with
a sharp pain again . . . and [he] thought his head would burst with the
pain.” 2 See #6.
- “It was pain beyond anything Harry had
ever experienced . . . his head was surely splitting along his scar; . . .
he wanted it to end . . . to black out . . . to die . . . And then it was
gone.” 2 See #6.
- “His head was surely going to burst with
pain, he was screaming more loudly than he’d ever screamed in his life. And
then it stopped. Harry . . . was shaking uncontrollably.” 2 These
three descriptions caused cluster headaches to be considered.
- “His scar seared and burned . . . the pain
of it was making his eyes stream…”3 The watering eyes bring to
mind cluster headaches, paroxysmal hemicrania, and Migraine.
- Harry laughed again because he knew it
would incense her, the pain building in his head so badly he thought his
skull might burst.” 3 See #9.
- “His forehead hurt terribly . . . it was
aching fit to burst. He opened his eyes . . . he felt as though a whitehot
poker were being applied to his forehead . . .He clutched his head in his
hands; the pain was blinding him . . . he rolled right over and vomited over
the edge of the mattress.” And soon after: “The pain in his forehead was
subsiding slightly . . .He retched again . . . feeling the pain recede very
slowly from his scar.” 3 In both examples 8 and nine, for the
first time, the pain is described by Rowling as “building.” This indicates
the possibility of Migraine. Other indicators of Migraine are that Harry
awoke in pain, and the pain caused him to vomit, which brought relief.
Harry’s attacks meet all but one of the
criteria for Migraine without aura, the one that says the attacks last from 4-72
hours, untreated or unsuccessfully treated. It’s not unusual for children’s
Migraines to have a somewhat different pattern than in adults. It may be that,
as Harry gets older, the pattern will become better established and facilitate
diagnosis.
Thus, Sheftell and Steiner classify Harry’s attacks as probable Migraine, which
they describe as “a diagnostic refuge for headache that appears to be migraine
but obstinately fails to meet one (and only one) of the criteria for that
diagnosis.”
They do reserve the possibility that Harry’s
attacks are a secondary headache disorder, meaning that it has an underlying
cause or is attributable to another disorder. They state, “the proximity of
Voldemort still suggests this is in fact a secondary headache disorder
manifesting with migrainous features. This possibility needs to be tested by
final removal of the presumed cause: resolution following removal of the cause
is an important diagnostic criterion for almost all secondary headaches.
Summary:
I borrow this paragraph from the authors of the journal article as it so
eloquently summarizes the need for education and awareness as well as the
motivation for the article:
“That even a young male Wizard has
recurrent disabling headache is a reflection of the wider problem of
headache in children and adolescents. In the Muggle world, the burden of
child and adolescent headache is of under-recognized importance; as in
adults, it is very often under-treated. We applaud the efforts of the
paediatric subcommittees of both the International Headache Society and the
American Headache Society to raise awareness of these issues, and appeal for
assistance to the world of Magic. Headache need not be a curse for Muggles
or Wizards: it can be lifted with research, better to understand it, and
education, better to manage it.”
1 Harry Potter and the Philosopher’s Stone
2 Harry Potter and the Goblet of Fire
3 Harry Potter and the Order of the Phoenix
____________
Resources:
Sheftell, Fred, MD; Steiner, Timothy J., MB, PhD; Hallie Thomas. “Harry Potter
and the Curse of Headache.” Headache 2007;47:911-916.
Interview with Dr. Fred Sheftell. July 1, 2007.
© Teri Robert, 2007 - 2008.
Last updated August 26, 2008.
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